Tuesday, March 4, 2014

TEN! The Big 1-0

At risk of sounding dramatic, Elena made it to ten.  It's not really that dramatic when we learned of a six year old with Cystic Fibrosis named Emily who passed away on March 1st.  This stupid stupid disease with no real rhyme or reason as to how it takes these precious lives.  If there was only a pattern or similarities between cases, but yet there really isn't!  These kids are healthy and doing great, then take a sudden and quick downward spiral that leads them to eternity. Hence the reason that any sniffle or cough sends us into over drive and super cleaning mode.

We know Elena has Cystic Fibrosis.
We know Elena is doing very well and has great lung function.
We know that Elena does her treatments and benefits from them.
We know that we are doing all we can to keep her healthy.

We don't know if or when CF will take her.  Dramatic, yes, but also a reality for Elena and our family.

We could choose to live our days in fear, but instead we live our days with FUN!

Many people were floored by our Epic Harry Potter party we threw for the E's. (See more here) I justified it for many reasons.  First, why not just host a huge party for multiple kids birthdays that are so close.  Second, we have not thrown a big party in a couple of years.  Third, we don't know how long we have together with our kids so "Go big or Go home!" Fourth, Elena is 10...she has made it to 10.  This IS a big deal!! This is a REALLY big deal!!  So we celebrated like only our crazy family would.  Adults dressed up like wizards and kids running around on brooms with homemade wands.

Please consider helping us bring more tomorrows for all CFers by donating towards Elena's fundraising efforts here:  http://www.razoo.com/story/Super-E-S

Life is precious.

Go have loads of FUN today with the people you love.

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