Tuesday, December 14, 2010
FINALLY! After 6 1/2 years, Elena is swallowing her enzymes instead of having to break open the pills and mix with applesauce. This is HUGE! Way to go Elena. Mommy and Daddy are SO proud of you.
Now the 20 pills a day can be swallowed with ease instead of spilled on the floor as we carefully try to break them open:)
Tuesday, November 30, 2010
The rest of the appointment was full of good news; weight gain and improved lung function, RIGHT ON! Praise God!
Lastly, if you have kids...they may enjoy watching this 18 minute musical Elena was in called Scrooge in Bethlehem. She is the pink Shepherd...pink...of course!
Thursday, October 28, 2010
Wednesday, August 25, 2010
For now, we are not scheduled back until November 23rd. Thanks for all the thoughts and prayers. God continues to work through each one of our fabulous friends (and of course our devoted family!)
Tuesday, August 10, 2010
Monday, August 9, 2010
I have posted a video of Elena leaving for school. Also, there are a few pictures and a video of our super hero cape dance party that followed dinner. Always crazy fun around here!
Tomorrow Elena has her CF Dr. visit. We are excited to let Dr. McKean know that Elena now weighs 53 POUNDS!!!!!! Her weight has shot up a ton this summer. We are all so thrilled that weight has been less of a problem for Elena this year. Having the extra weight will help keep her lungs healthy. Strange? Yes, I know. But when the rest of her body is healthy, her lungs do not have to work so hard to fight off infections.
We are also anxious to see what else we can do for Elena's recent cold that won't leave. I will post after her appointment tomorrow night.
Tuesday, June 8, 2010
Wednesday, May 12, 2010
SOOOO...on to the fun stuff!
When did I go?
On Friday May 7th, 2010 Six Flags was only open for Homeschool kids. It was VERY hot. There was a water mister that cooled you off. (Mommy and Dr. McKean nicknamed this the Pseudomonis Maker). I went when I weighed 45 pounds.
Why did I go?
I went because I FINALLY weighed 45 pounds. I wanted to go on a roller coaster. I like the Willie Coyote roller coaster. I also went because Mommy drove me, Will, and Aunt Jennifer.
Who went with me?
I went with my Aunt Jennifer, Cousin Will, and Mommy. I wanted Mommy to with me because the next day it was Mother’s Day and I wanted that to be a big activity to do before Mother’s Day with my Mommy. I don’t really know what to say about Aunt Jennifer. Sometimes I like her to come because I like to ask her when I can come to her house to play Barbies. But mostly I like to be around her because she looks like my favorite princess Snow White. I wanted to go with Will because I love him and I would like to sit next to him on some rides. What did I do?
I rode lots of rides. I rode the Scream Machine. I kind of liked it, but I really didn’t like it when my butt popped up off the seat. I only like the little small hills. I did NOT like the Georgia Cyclone. I didn’t like it because it was really really really fast and bumpy. I like the Monster Mansion. I did not like the scary part where a big monster with red eyes was pointing at you. Aunt Jenn didn’t like it either. I also didn’t like where they blew out hot air when a monster ate chili. I like the Hansen antique cars and the bumper cars. I like the antique cars because I got to drive it and it was easy.
What did I eat?
I ate a hamburger and some fries. Aunt Jenn bought me a frozen strawberry lemonade. It was yummy! On the way home, we got a Gummy snack from Bass Pro Shop. We stopped at Wendys before that for a yummy dinner. When we dropped Will and Aunt Jenn off at Bass Pro Shop, I took a little nap.
My favorite things!
My favorite ride was the Willie Coyote small roller coaster and the log jamboree. The Willie Coyote was my favorite because I leaned to the side for a really long time. I like leaning to the side but I don’t like upside downs. I like the log jamboree because it was a wet ride. I liked the small hills. I like fast small hills, but not fast big hills. I like the Monster Mansion because there was a duck farmer that had a hose and water was coming out from it for real. He sprayed us!
Did I have fun?
YES! I had fun because there were lots of rides that were fast and really fun. I had fun because I was with my Mommy, my cousin, and my Aunt. I like riding rides with them. I sat next to Will in the Monster Mansion. THAT was fun. I rode alone with Will on the Willie Coyote and that was the MOST fun; just me and Will.
• “Have a Six Flags Day!” was EVERY employee’s favorite saying.
• Humming, “Dum dum dum dum du, dum-da-dum” while doing a silly dance
• Can I get an “oh yea!” Everyone answers before EVERY ride.
• “Why do I look scared in this picture when I was having fun?” as Elena looks at one of the ride pictures.
THAT’S ALL FOLKS!
Friday, March 26, 2010
Here is part of committee for adult marathon team 65ROSES that came out to cheer on our little Rosebuds! These people have connections to CF and are AMAZING individuals that I am honored to know.
My friend Patti keeping me company at our sign in table.
The Grandpas with the Grandbabies....they love their job!
Our family after the race.
Ethan trained for the race, but when it came to race time, he refused to get out of Daddy's arms. SO cute!
Elena was VERY serious about her training, and very serious about her race. She had a giant smile on her face as she approached the finish line. THIS made Mommy so very proud!
Elena and her friend Cassidy show off their medals. A much deserved reward for these girls.
Way to go Rosebuds!
Thursday, March 11, 2010
Hello friends! I have been given a challenge. 10 days to $1000.00. I need your help! All I need is $235.00 more to meet my goal. Please consider donating $5, $10, $15...whatever you can. Every cent makes a difference. I am alive and well today b/c of dollars donated towards research.
We're taking part in the Rosebuds to raise money for Miles for Cystic Fibrosis- please make a donation by visiting our Firstgiving page: http://www.firstgiving.com/elenagoodrow
You can donate online with a credit card. All donations are secure and sent directly to Miles for Cystic Fibrosis by Firstgiving, who will email you a printable record of your donation.
THANK YOU THANK YOU THANK YOU!
Sunday, March 7, 2010
Friday, February 12, 2010
Another good report can be viewed in this clip below. Elena has decided that she wants to be a ballet teacher by day and a "weather girl" by night. Here is our local weather girl, Elena doing Snow coverage in the Eastern Suburbs of Atlanta. VERY cute.