Friday, August 15, 2014

Always educating about CF!

Our little "Wish for Wendy" Cystic Fibrosis fundraiser ambassador speaking to her softball team at their office in Buckhead. Go team Balentine!
 She was armed with her Bulletproof Coffee and a  note card with questions to ask herself so she would stay on cue.
 She really loves to speak to a crowd.
 She prefers a few hundred, but 25 will do, too.  Especially when they are friends to the CF community!  She met the CEO Mr. Balentine and gave him her business card!!  She made the room cry and laugh; sometimes at the same time!
She made a call on her "retro" phone to tell family about her new connections made.  Her goal is to meet Jimmy Fallon when she is in New York.  She met TWO people that have a connection.  :):)  One that wants her 10 year old son to be Elena's boyfriend. AND the entire office which was so friendly and supportive.  It was wonderful to look around the table and see our CF family grow.
 We enjoyed a post speech breakfast at our favorite place, Waffle House!

Thank you Team Balentine for welcoming us into your work place and treating us like family.  We are SO excited to help your team succeed in many ways!  Let's "Catch a Cure for CF" together!

Saturday, August 2, 2014

Early morning Treatments are more fun with a friend!

Elena has friends that are old enough now to ask questions about CF. Elena is old enough to answer them herself. Mommy just gets to sit back and try and hold herself together as she listens to children comprehend what Cystic Fibrosis is.
Friend: "Does having CF hurt?"
Elena: "No, the treatments are a pain, my tummy sometimes hurts, but I'm not in pain all the time."

Brother: "Elena, you will die with CF won't you?"
Elena: " Yes, I'll have it when I die because even a 'cure' won't get rid of it."
Emily: "We all will die sometime."

Friend:  "I don't know why, but watching your cf YouTube videos makes me sad."

Mommy's silent thoughts: " Me too."

So thankful for good friends that celebrate and embrace who Elena is and feel comfortable enough to ask her questions about life with CF. She's a very fortunate young lady.

My aunt said that she thinks I use busy, fun, and silly stuff to distract us all from the stress and sadness that CF can bring. I hadn't thought of that but she may be right! So what sillyness should we take on now 

Want to see what my family is up to?