Monday, May 4, 2015

On your mark, get set, cure CF!

Rain storms are apparently our kryptonite! We were rained out of our kids race on April 25th for Rosebuds.  However, we made sure to run as soon as the rain stopped. 

Cystic Fibrosis can be an overwhelming disease for the patient and their family.  Everyday isn't difficult, but there are many moments during the day that can crush a parent.  We are fortunate that our daughter, Elena, is a champ with her medicines (the whole cabinet full of them).  She is compliant with her treatments (All 1 and 1/2 hours of them).  "Can't" is not a word in her vocabulary.  She views herself as pretty, smart, and confident.  That is what you want in life for your child. Elena has all the support she needs because of the many amazing people in her life. Thank you for being a part of that!

Here are our Rosebuds running today during the brief sunshine!
On your Mark, get set,
Short legs unite!
And the winner is...
 We have encouraged all our team members to run when they can and share pictures.
Here are some of our other Rosebud CF Superheroes running their own virtual race.

Our top fundraisers were the Johnston's Crew pictured above and the Goodrow Gang! 
Way to go Rosebuds!
A special award went out to our top and most consistent supporters every year since the first Rosebuds race five years ago.  Thank you to the Goodrow Gang's Nana and Papa for being a huge support in so many ways!  Hope you enjoy our Miles for CF super soft and amazingly cozy team hoodies!
So far the Rosebuds have raised $2.925!  Want to help us break $3,000?  Donate here:

That brings the overall total of fundraised dollars by Rosebuds CF Superheroes since 2010 up to $69,725.05!!! 

Thank you to all who support our family and our cause to help find a cure for Cystic Fibrosis. Our hearts are full to the brim because of your kindness and generosity!

For our daughter Elena and all her CF friends, we say THANK YOU!

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