Yesterday was Elena's regular CF appt. We were happy with the timing because she has been having some changes in her health.
One, she has not been eating that great and would happily skip a meal or two (and sometimes does) every day. As a result, she has not gained any weight. She is just NOT hungry.
Two, she is struggling with tummy pain. Twice in two weeks (exactly one week apart) she had pain so severe that she could hardly move and all she did was moan. Her Dr. said it could be one of three things, however he ruled out two on the spot. The last man standing is the telescoping of the intestines. This is when one section of the intestines slides over into itself. It is very painful. Dr. McKean felt like if she had this, the telescoping would not undo itself and therefore she would be in pain all the time. She is more susceptible to this b/c of her numerous intestinal surgeries as a baby. At this time, we are just to wait and see how it goes...does pain go away or does it get worse. No x-ray can show you this unless you happen to get her in for an x-ray while the pain is occurring. So for now, we wait. Atleast some things have been ruled out.
Three, Elena's lung function is down. Her lungs sound clear, her nasal passages are slightly swollen, but otherwise everything sounds good. In February she was started on a super antibiotic to help clear up a nasty congestion issue that apparently is still lingering in her lungs. We can't hear it and she is feeling "ok", so it is just one of those deep in the lungs issues that we are working hard to get out. We have started her on a different antibiotic and she will be on a steroid five days before her follow up appointment in two weeks on March 27th.
Despite the lung function being down and not having any real answers about her tummy pain, we had a great time seeing Dr. McKean. Elena truly loves her doctor. She made him a card that read, "Dear Dr. McKean, Thank you for being the best doctor ever (at least when you are not giving me shots)." When we entered his office, we had no idea how much he would need it! It had been a very difficult day for him (yes, Doctors have bad days). Elena's card made him smile and laugh. God's timing....good stuff...even when we can't see it right away.
2 years ago