Thursday, April 2, 2015

A Sea of CF Superstars!

Tonight was a wonderful date night with my oldest boy, Ethan. It began with his selection of my dress, jewelry, jacket, shoes, and even an additional spray of hot pink color on a section of my hair! Then I had specific directions on how to stand and what my face should be doing for our pre-date picture. My little handsome date was wearing his new tux. The kid looked sharp in his tux and Mickey Mouse Converse kicks. Lesson I learned from this; I am no longer in charge of my clothing choices. Ever.
It was a special night. We went to celebrate all the volunteers that do so much to help the Atlanta chapter of the Cystic Fibrosis Foundation be the amazing success that it is.  We were in a room filled with a sea of CF super stars!  It was like walking amongst celebrities. I knew all their names as well as the wonderful things they have done to provide funds that are pushing superfantastic new drugs down the pipeline that will help our Elena and many others like her!  Now I had finally bumped shoulders and shaken the hands of these amazing folks plus hugged many long time friends in my fabulous CF family!

My parents were among the rewarded.  Since Elena's birth and diagnosis, my parents have gone above and beyond to make things happen in the CF community.  To listen to the presentation for each volunteer and see my parents among the greatest of the great was an honor. Did I cry? You betcha! Ask my dear friends and they will tell you I can't make it through a CF event without many a tear shed.

Ethan is the next generation of CF support for people like his big sister Elena.  He knows it, too. 
While on the car ride home, Ethan was planning his first invention. The conversation went like this:
"It is going to be a broom like Harry Potter that flies for real. However, I should be the one to test it. Em and EV are too small, You are too heavy (thanks for that kiddo), and Elena already has CF and I don't want her to also have to deal with a broken bone or something. But until I can do that, I think I'll do a parody to a Bruno Mars song in my new tux. I'll sing about Cystic Fibrosis for my sister. It will be funny because I look like Bruno Mars and I dance good."

Yes, Ethan, if will be funny. Yes, you dance very well. Yes, you will make a difference in this world because you want to help other people.

Wow, I've got my own little sea of CF Super Stars in my home, with my parents, and among my friends.

Want to join the sea with me?

Register your child 14yrs and younger to run a FREE race on April 25th here:

Register yourself for a 10k on Labor Day here:

Join us in the sea of CF super stars. It feels good; really good.

1 comment:

Want to see what my family is up to?