Monday, December 19, 2011

And a Partridge in a Pear Tree...

(taken at my parents for our BFG Pretend Christmas...thanks to Will for this name B (Bostelman) F (Freeland) G (Goodrow)...taken PRE-flu outbreak)

Ethan, Emily, and Everett were diagnosed with Influenza Type A on Tuesday of last week. The moment their diagnosis was confirmed, we sent Elena out of the house. She has been living with her Grandparents for a week now and is symptom free! It is a good thing we sent her right away (at the Doctors insistence) b/c since that day we have been cleaning throw up, doing every song and dance to get the medicine down the kids (I even sang "A Spoon Full of Sugar" while whirling and twirling through the Candy Cane Forest...two movie references here), doing 4...no make that 7 loads of laundry a day, and praying Elena would stay healthy. Oh, did I mention that Daddy had been out of town all that week? I should be exhausted and cranky. However, I've got friends nearby that have made food drop offs, medicine drop offs (thanks girls) and a ton of family offers to help out. So instead of tired, I'm very grateful!
After a trip to the doctor and the hospital on Saturday we learned that:
Ethan has the flu, pneumonia, and an ear infection
Emily has the flu, severe bronchitis, and an ear infection
Everett has the flu and an ear infection
and a Partridge in a Pear tree!

Elena has NOTHING! Thank you Dr. Miller for your quick action to remove her, thank you Dr. McKean for the quick meds to protect her, and thank you grandparents for keeping her for so long! She thinks she is on vacation even though Nana continues to do homeschool with her.

Today the kids are doing better. The fevers are gone, the smiles are back, and the sibling bickering is right back where it was two weeks ago. Of course, there is a few hugs and sweet gestures here and there to keep a mother's heart happy.

It has been surprisingly nice to be stuck at home. Our home is decorated all festive, the fireplace stays lit and warm, and the advent wreath is lit every meal (the kids are WAY excited about the fourth candle being lit yesterday...I have to admit that I was, too!) The flu forced a slow down and I think it came at just the right time.

I hope you all have a chance to slow down and really enjoy the joy that the birth of Jesus brings! Merry Christmas!!!!

Thursday, December 1, 2011

Thankful


We are so thankful for Elena's good health. SO many people have helped Elena to be at the great spot where she is. Thank you to ALL of you for your hard work and efforts to keep Elena healthy, growing, and strong. Ethan, Emily, and Everett especially thank you...they are so happy to have their big sister Elena.

Wednesday, November 9, 2011

Lung Function Improving!

Why is it that everytime I go to type "lung" I type "lunch" instead? Must be hungry or the thought of getting food in Elena never leaves my mind. Could easily be either!

Elena's visit to Dr. McKean for her Cystic Fibrosis wellness follow-up went better than expected! Elena has had a runny nose this week and the end of last week. She has been totally herself thru it all, but we have learned that even when she is acting normal, her insides can be going haywire. SO, we were surprised to have Dr. McKean tell us that her lunch...I mean LUNG function is the best it has ever been and that it improves with each visit. WAAAA-HOOOOOOOOO! Joel and I feel that her weight gain has been helping her overall health. She is actually a little chubby in areas! This makes us so happy. I have never been more happy to have to say, "Sorry, Elena...no seconds tonight." We N E V E R thought we would have that problem. We prayed for this day and God brought it!

The cold Elena has could be an infection. We will have results from her culture on Friday.

Saturday, November 5, 2011

Thankful


This month as we write down and reflect on the things which we are most thankful, one thing continues to return to the forefront.

Last night while we watched Elena do her breathing treatments with Everett in her lap, our hearts filled with thanksgiving for God's gift of our CF free baby, Everett, this year. Everett sat in Elena's lap and pulled at her nebulizer with his giant baby cheeks jiggling from the vest treatment. We are so thankful that he will never have to experience the rigorous treatments that go with having Cystic Fibrosis. We are thankful that Elena is doing so great. We are thankful for our two adopted sweethearts, Ethan and Emily, that fill our home and our hearts with joy every day. Each of our children has been such a special gift. God is so good...ALL the time!

Our entire family has a cold. One by one we have developed runny noses. Elena continues to fight it off like a champ. Please continue to pray that she fights off the cold and nothing settles in her chest. She will have her next CF appointment this month. We are hoping for a boring visit. Those are our favorite kind!

Saturday, October 29, 2011

Test was negative!

So, after being off the medicine to get rid of the Aspergillus, waiting to get tested after being off the Aspergillus, being tested to see if she still had Aspergillus, and then waiting for the test results...she no longer has Aspergillus! Praise God! So the good health for Elena continues forward. Prayers for Elena have always been so amazingly strong!

Wednesday, July 6, 2011

ABPA blood test done...now we just wait for results

Elena did great with her blood draw today. She screamed as she was told she could. Everett was sleeping and didn't wake up. Ethan kept saying, "Why is she screaming?" Emily looked like she might cry herself. They were all in the room with Elena for the big event. As soon as it was done, Ethan and Emily gave Elena a big hug and Ethan said, "You so brave Elena."
We will not have results of the ABPA test back for two weeks. Meanwhile, Elena will be treated for aspergillus for three months. If the bloodwork comes back positive for ABPA, then she will also take a steriod to help clear that up.

Meanwhile, Elena still shows no signs of ABPA. Thanks for all the offers to watch the kids while we went to the Doctor today. I got 15 offers to watch Ethan and Emily! It feels good to have such an awesome support system amongst our friends and family.

This picture is handy work by Ethan. How is it that a 2 and 3 year old are better with an iPhone than their Grandpa? ;)

Tuesday, July 5, 2011

Allergic Bronchopulmonary Aspergillosis (ABPA)



We just learned that Elena's recent throat culture tested positive for aspergillus. Her first time. Thank goodness she is doing so well otherwise and is not showing symptoms of ABPA. We'll learn more from the doctor tomorrow when Elena has her blood drawn. Hoping she cooperates like last time.

What is allergic bronchopulmonary aspergillosis (ABPA)?

Aspergillus species is a fungus that often lives in the airways of adolescents and young adults with cystic fibrosis (CF). When people develop an allergic reaction to aspergillus, it is called Allergic Bronchopulmonary Aspergillosis. ABPA affects about 2 to 11% of the people with CF. It causes inflammation in the lungs and, if untreated, can cause further scarring and fibrosis.

See more HERE

Thanks for your continued prayers. We are hopeful that this will be nothing since she has continued to be so healthy and shows no symptoms of anything more serious.

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